ESTRO 2024 - Abstract Book

S5700

RTT - Patient experience and quality of life

ESTRO 2024

Keywords: quality of life, radiotherapy

References:

F. Scotté, P. Bossi, E. Carola, F. Gomes, S. Knox, F. Strasser - Addressing the quality of life needs of older patients with cancer: a SIOG consensus paper and practical guide; ANNALS OF ONCOLOGY, VOLUME 29, ISSUE 8, P1718 1726, AUGUST 2018; DOI: https://doi.org/10.1093/annonc/mdy228 Aurore Goineau ,Loïc Campion,Bénédicte d’Aillières,Brigitte Vié,Agnès Ghesquière,Guillaume Béra,Didier Jaffres,Guy de Laroche,Nicolas Magné,Xavier Artignan,Jérôme Chamois,Philippe Bergerot,Etienne Martin,Gilles Créhange,Elisabeth Deniaud-Alexandre,Xavier Buthaud,Yazid Belkacémi,Mélanie Doré,Laure de Decker,Stéphane Supiot - Comprehensive Geriatric Assessment and quality of life after localized prostate cancer radiotherapy in elderly patients; PLOS ONE; Published: April 9, 2018; DOI: https://doi.org/10.1371/journal.pone.0194173 Sanders Chang, Nathan E. Goldstein, Kavita V. Dharmarajan - Managing an Older Adult with Cancer: Considerations for Radiation Oncologists. Biomed Res Int. 2017; 2017: 1695101. Published online 2017 Dec 13. doi: 10.1155/2017/1695101

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Digital Poster

Awake Radiotherapy: collaborating with families to improve paediatric brain tumour radiotherapy

Holly Roberts 1 , Jo McNamara 2 , Naman Julka-Anderson 2

1 Larsen's Pride, Charity, Nottingham, United Kingdom. 2 Rad Chat, Oncology Podcast, Sheffield, United Kingdom

Purpose/Objective:

Larsen was a kind, sensitive and super intelligent five-year-old. In 2019, he was diagnosed with a medulloepithelioma of the optic nerve. Larsen endured 11-hour brain surgery, numerous side effects and infections, 6-weeks of radiotherapy and two rounds of high dose chemotherapy, before dying as a result of the toxicity from chemotherapy. Larsen’s Pride is a charity established in his memory that aims to improve the lived experience of children <12 years undergoing brain tumour treatment. Larsen’s, and our experiences as parents, are a key driver behind the work of the charity. From the outset, it was clear that improving the lives of children during radiotherapy would be our first big project. For Larsen, and our family, radiotherapy was a time of comparable respite to the other treatments. Larsen accessed radiotherapy awake, rare in four/five-year-olds. This allowed him to go to school, see friends and live at home rather than hospital. We believe all children with brain tumours - with a potentially terminal diagnosis - deserve this opportunity.

Aims of the radiotherapy project: