ESTRO 2025 - Abstract Book

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Invited Speaker

ESTRO 2025

funded by the Irish Cancer Society, as part of the IDS-TILDA longitudinal study, explored the barriers and enablers to accessing cancer care for underserved communities including those with intellectual disability.

Methods This study used a qualitative research design. Individual and focus group interviews were conducted with adults with intellectual disability, and healthcare professionals with experience in the provision of cancer services to patients with intellectual disability, either face-to-face or online. Using Braun and Clark's six-stage process and NVivo software, interviews were thematically analysed to gain insights into the barriers and enablers for accessing cancer care. Results Individuals with intellectual disability (n = 5), who had a previous cancer diagnosis, identified that accessibility and communication difficulties were barriers for accessing cancer services. Personal support, from family, friends, and support services, was very important for improving their cancer journey. Professionals (n = 20) highlighted four themes: communication, accessibility, personal support and systemic issues as barriers and enablers for patients with intellectual disability. Conclusion This study highlights areas in which enhancements can be made to improve the experience of cancer patients with intellectual disability, particularly with appropriate, tailored communication. Specialised staff education and training could enhance the acute experience for both patients and staff. The development of accessible information on cancer for those in marginalised groups e.g. easy read material, DVDs would fundamentally improve their overall cancer journey.

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Speaker Abstracts Improving radiation therapy information for LGBTIQ+ patients Amanda Bolderston N/A, Queering Cancer, Centreville, Canada

Abstract: Lesbian, gay, bisexual, transgender, intersex and queer plus (LGBTIQ+) people affected by cancer have high levels of unmet needs related to physical, mental, sexual, and psychosocial well ‐ being. Disparities exist in screening, treatment and support guidelines that often exclude members of this community. This population is less likely to access healthcare than their heterosexual and cisgender peers, which can lead to later stage cancer detection and poor treatment outcomes. Healthcare professionals’ (HCPs’) attitudes and practices can shape experiences of care and support of LGBTIQ+ people affected by cancer and a major factor leading to dissatisfaction with cancer care is a lack of HCP education in this area. Because education is sparse, LGBTIQ+ patients often need to educate health professionals they interact with about their risk factors or health needs to receive appropriate care. Psychosocial support is also lacking, including access to support groups. Patient education and information is a vital part of cancer treatment, including radiation therapy, and can equip patients and caregivers to understand and manage their care. The use of patient education materials (e.g. booklets, handouts, videos, online resources etc.) to supplement in-person teaching can improve educational effectiveness and additionally positively affects patients' quality of life, adherence to treatment, pain management, and satisfaction with decision-making. However, most cancer information is oriented to heterosexual and cisgender people and does not address the specific needs of LGBTIQ+ patients, including concerns about treatment side effects, fertility issues, gender-affirming care, and body image. Patient education materials may not reflect diversity in gender expression, sexual orientation, relationships and body types and/or contain LGBTQI-inclusive